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Roberto Castillo
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Join date: Apr 30, 2024
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Apr 18, 2025 ∙ 5 min
3 illnesses that only or mainly affect females
In this article we will explore three that only or mainly affect women, Rett Syndrome, Turner syndrome and Aicardi syndrome.
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Mar 24, 2025 ∙ 1 min
Stories and poems shared to amplify rare disease day 2025 "More than you can imagine".
It was a great platform for expressing to the wider audience just what life with a rare disease is can be like, from the hospital visits....
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Mar 7, 2025 ∙ 2 min
Luis from a carer's perspective
Working with Luis has been both a rewarding and challenging experience. He is an incredibly happy child, always smiling and laughing.
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