top of page
3 illnesses that only or mainly affect females
In this article we will explore three that only or mainly affect women, Rett Syndrome, Turner syndrome and Aicardi syndrome.
Stories and poems shared to amplify rare disease day 2025 "More than you can imagine".
It was a great platform for expressing to the wider audience just what life with a rare disease is can be like, from the hospital visits....
Luis from a carer's perspective
Working with Luis has been both a rewarding and challenging experience. He is an incredibly happy child, always smiling and laughing.
bottom of page