My Siblings
Luis is fortunate to have not only great parents but also a great brother and sister. Eva his older sister has been such a huge part of his life, from his first seizure, learning about his rare illness to supporting him as much as she can. He is very lucky to have her, and this section and our shop was inspired by her continuous efforts.
As parents we also understand that having a sibling who needs additional attention is not easy, as the time we dedicate looking after our children starts to vary greatly. We know that Eva loves Luis and she understands it is not easy for us but at the same time she is a child and still needs that support from us as parents.
We would like to achieve a few things with this area, to continually post things that Luis and his siblings do together, to encourage other siblings to share their stories here, and connect with Eva so that they have a community where they can easily express themselves.
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Meet Eva
Who am I?
I am Eva, Luis’ older sister and I am roughly around 10 and a half years old at the time of writing this. How many siblings do I have? I have 2 siblings, they are both boys who are younger than me, sadly I do not have any girl siblings lol. One is called Luis of course and my other is called Antonio. Luis is 6 years old and Antonio is 2 years old.
Luis and I
What things do Luis and I like to do? Luis and I like to play different things like hide and seek, tickling and you can’t catch me. We also like to throw a ball to each other, although he cannot catch it I slowly roll it to him. He normally takes his time to throw or roll it back but he enjoys doing it. Luis and I play dinosaurs on the bed, blow on his belly as the silly noises are funny and make us laugh. When we are outside we like to go one the slide and the swing in the park, blowing bubbles and one of our favourite things is going to the swimming pool with water slides. I am a very good swimmer so I enjoy looking after him, and Luis is also swimming in school so he is quite good. He also likes to ride on my back around the pool. When we were younger we used to read books in our tent, now we usually just read on the sofa. Sometimes I help Luis to have a shower or feed him.
Living with my brother
What is challenging in the house? It’s hard to share the tv as Luis uses the tv most of the time to watch one show duck tv, so we need to use computers, tablets even phones! We need to change the tv or tablet for him most of the time as he cannot do it for himself. It’s hard to eat normally at the table if we sit next to each other because he always pinches me or tries to grab my food if he likes it. He'll hit us if we pass to close to him or sit in his favourite part of the couch where he stays on his knees and bounces to his tv shows. Sometimes if I try and help him with the tablet he will hit me because he thinks ill disturb him T_T. Having more time to play with my parents because during the day they have to keep an eye on him or help him. What is challenging outside of the house? We can’t go to restaurants because he would cry and not stop until his fries arrive. My dad normally has to distract him with duck tv on his phone. At the playground getting more time to play with my parents is difficult because someone always has to look after Luis. Going somewhere I want to go but Luis wouldn’t find it interesting.